Tuesday, May 8, 2012

Minocycline - 1 Month Update

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Well, we're a bit past the one month mark - but I've been so busy I never posted an update!

I really wish I could say this has been our little miracle for Ayden, but that just isn't the case so far.  I do think it has helped him in the month he's been on it, but it hasn't been as effective as I've heard with other FX kids.  The good things we're seeing still include him attempting to communicate more and better.  He is still pushing limits when it comes to using PECS and finding new and creative ways to tell us what he wants.  He is still playing with toys the way they were meant to be played with sometimes - though spinning continues to be one of his favorite past times.  We are also still seeing his fixation on certain toys much less.  All of these are great things for Ayden, but we were just hoping for more.

That's not to say the next month isn't going to start showing improvements again.  I know many parents that haven't seen changes for the first few months and I've been told anywhere from 2 weeks to 6 months.  We are certainly not giving up, but still being cautiously hopeful.  In the meantime, I'm very excited to see the changes we have seen in Ayden since he started on Minocycline.  Not what was expected, but fantastic changes nonetheless.  We'll keep moving forward and I'll update as we go along.

1 comment:

  1. Thanks for the update! We are watching Ayden's progress and hoping you continue to see good changes.