Today I gave Ayden his last dose of STX209.
I've held my head high though all this. I've done everything I can, extended every favor I had. And today, it feels like none of it matters.
We will weather this storm.
We will find something elese that works.
I will continue to fight.
But today, today I cry. I cry for the hope that we had with this medication. I cry for the look on Ayden's face as he tells me he doesn't want the new medication. I cry because I can't explain why so he could understand. I cry because he deserves more.
I cry because no matter how hard I have tried.... for now, it wasn't enough.
We all have those days, and I don't think we should pretend we don't. But, you are an inspiration to so many of us because we know you won't give up!
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