Friday, May 13, 2011

MI Fragile Clinic Opens!

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This is a direct copy of the email I received regarding the opening of the MI Fragile X Clinic.  We are SO excited that we now have an in-state clinic (especially after driving 5.5 hours this week to get to one!)

Although it is still going through the process to be an official, NFXF-sanctioned clinic (see more at and part of the Fragile X Clinical & Research Consortium, the Fragile X Clinic at the University of Michigan is open for business!  An exciting time for families in Michigan.

As you know, we had Dr. Peter Todd speak at our Fragile X Association of Michigan meeting last Saturday evening.  It was great to have him there.  He filled us in on the FXTAS research going on in the Todd lab at U of M, gave us some genetics info and subjected us to a genetics quiz.  It was a great meeting and well attended since we had a special guest.

If someone is interested in going to the U-M Fragile X Clinic (for someone with FXS, FXTAS or FXPOI or a possibility of one of the Fragile X-associated disorders), they would contact:

Rob Owens - Fragile X Clinic Coordinator
734-232-6750 or 734-763-3427
rowensii AT

The three directors of the U-M Fragile X Clinic are:

Jeff Innis, MD, PhD
Professor of Human Genetics; Professor of Pediatrics and Communicable Diseases;
Director, Division of Pediatric Genetics; Director, Michigan Medical Genetics Laboratories

Donna Martin, MD, PhD
Assistant Professor, Department of Pediatrics, Division of Genetics,
Department of Human Genetics

Peter Todd, MD, PhD (specializing in FXTAS, more details on FXTAS at
Bucky and Patti Harris Professor
Assistant Professor of Neurology
Department of Neurology

There are a number of specialists at University of Michigan and other clinics in Michigan who are interested in being your Fragile X experts in the state.  Again, the first step would be to call Rob, Clinic Coordinator.


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