Thursday, August 27, 2015

So, what in the world has been happening for the past eight months?

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It has been a long while since I have posted here.  I figured I'd give a little update on things going on in our world.

1)  We transitioned Ayden from his school and teacher he had been with since Kindergarten (and some of his classmates since he was 3!) at the end of the year.  Change is scary.  Really scary.  We also moved from a traditional calendar to a balanced calendar (basically year round) and moved from special education busing to general busing.  It was a BIG change - and all because Ayden was just doing so well in school he no longer qualified for the program he was in.  So, it was all very bittersweet.  We are now a few weeks into school and it is going better than I could have imagined.  Sure, there are kinks to work out.  Adjustments to be made.  We (as usual) have an amazing team though who continues to work us to give Ayden everything he needs to succeed and continue to push him to meet his full potential.

2) I was invited late last year to take a seat on the Board of Directors for the Fragile X Association of Michigan.  It has been interesting learning the ins and outs of how things run versus my idea of how I thought they ran.  The other Board members are great to work with though and I have been extremely happy to sit on the planning committee for our first conference hosted by our group since the International Conference for the NFXF was here.  We are about six weeks away and in the final planning stages.  Dr Marcia Braden is our guest speaker, one of the Fragile X experts for behavior (many would argue she is the best). You can check it out and purchase tickets at  They are only $25 / person and include lunch - super affordable!

3) (Not Fragile X related) I became completely hooked on a product last year, and ended up signing up to sell it.  On top of my many other roles, I now sell Jamberry nail wraps.  I do it mostly for fun, partly for the product/discount, definitely nice to meet more women.  Bonus:  My nails look amazing.  For real.  Check out my Instagram linked to the right to see some examples.   If you are interested in learning more about them or tying a sample, shoot me an email or check out my business page.  You can also request a sample here:

4)  My most current addition to our life.  I am not our district representative to the county's Parent Advisory Committee for Special Education.  I am extremely excited about this and the potential to change and make the special education process easier for parents.  I remember just feeling alone and lost when we started navigating the whole process of IFSP, IEP, therapies, and services.  It is a lot and often topped with just learning to deal with and manage a diagnosis.  I think a parent last evening said it best "Sometimes parents are just struggling to get dinner on the table each day, giving them an ear to listen and a hand to help guide is more often than not essential for the whole family."  Helping other families has always been my passion when I talk about this 'world'.  It is why I started this blog in the first place, it has guided me every step with new things I take on (right behind doing everything I can for my own kids).

As you can see, my plate is awfully full.  It is all good and necessary things, but it leaves little time for blogging and sharing.  I will try to update more than every six months though.  And for anyone reading this who needs support or resrouces, please email me or comment here or even look me up on Facebook, Twitter, or Instagram.  All the links are on my page and I would be more than happy to help!



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