Thursday, January 23, 2014

Update on the Family Part 3: Issac

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This should be the easiest of my updates, no worries about any developmental issues!  Right now though, this little guy is my most difficult child.  He is mouthy, stubborn, strong willed, bossy, confident, and exactly a perfect mix of his mom and dad.  You know that kid your parents always tell you they can't wait that you have - Issac is mine. The daily grind with Issac usually consists of him bossy his brother and sister around, a lot of tattling, and a lot of telling mom and dad how he thinks life should work...
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Tuesday, January 21, 2014

Update on the Family Part 2: Emmalina

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I was looking back over posts to figure out when my last update on Emma was, and found most of my recent posts had been about STX209.  So we'll start fresh today!Emma will be two in about 2.5 weeks.  As you know from reading previously, we have had her in early intervention since about 6 weeks old.  She started with just physcial therapy and a general developmental specialist.  At 10 months we added in speech therapy and dropped physical therapy.  Now, at 23 months old we are doing one final evaluation...
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Friday, January 17, 2014

Update on the Family Part 1: Ayden

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I've taken a long hiatus from the land of blogging.  I feel like there is not a lot to say most days that isn't a repeat of what has been said already.  I am inching in on three years of blogging here.  Yikes. I want to start posting more.  Our life and how we live with Fragile X changes so often, and keeping up with that for newly diagnosed families is important to me.  I want to continue to be a springboard into the lives of those that are just hearing Fragile X Syndrome for the first time. Even for...
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