So here we are...medication in hand!
Tomorrow we start Ayden on minocycline. Getting the right form/dose of the medication is a bit of work, but I think once I'm used to it, it won't be so bad. We currently have him on gel capsules, but since they don't make them in a low enough dose we have to split them open into water and give him the doses that way. We're hoping to find a pharmacy that can fill a script for 50mg tablets even if we have to order them. I know Ayden will take that so much better anyhow.
Today, we had to take him in for some blood work before beginning the medication. Blood draws and Ayden are two things that just should not be put together for sure. Needless to say, it was recommended and we felt it in his best interests before starting the mino. Turned out, he did much better than expected though! He still had to be held down, but really that was the part he hated the most. Daddy was the one who had the honors this time, and said Ayden didn't even flinch when they poked him. He was a bit clingy after wards, but a trip to visit the fish at Meijer followed by lunch at McDonalds definitely helped him out.
The next week or so should be interesting as we watch for any adverse reactions. I'm stressing a little about it, but only because he can't tell us if something is wrong so we'll have to watch him pretty closely. I think it's a mom thing! I can't wait to track any progress he makes, but am trying not to get my hopes up knowing it doesn't work for every FX kiddo. I'll keep you updated as we progress!