I had this video shared with me by a friend...and wanted to share it here as well. The video creator goes over some numbers, that I want to add Fragile X to as well.
Leukemia affects 1 in 1200. Funding: $227 Million
Muscular Dystrophy affects 1 in 100,000. Funding: $162 Million
Pediatric Aids affects 1 in 300. Funding: $394 Million
Juvenile Diabetes affects 1 in 500. Funding: $156 Million
Autism affects 1 in 100. Funding: $79 Million.
For 2010...the National Institute of Health (NIH) had a budget of $35.6 Billion.
$218 Million of that went towards Autism research, $29 Million to Fragile X research.
**NIH numbers taken from here, Prevalence numbers taken from here.
Fragile X is the most common known cause of autism or autistic like behaviors. The Fragile X gene is the cause for autism in 2%-6% of all children diagnosed.
I certainly don't believe Ayden can be "fixed" and there probably will never be a "cure" for Fragile X or Autism - but the research out there can help make life better for these kids, easier, more normal. It's this funding that can bring that much needed research and development about, and for that there can never be enough. I hope you take a few minutes to watch this video, it's well worth it.