I return here today (after a long time break) with a heavy heart. We've had an incident in our community this week involving two girls and bullying. A video was taken. The girl (who was the target in the video) gave the video to her mom who then posted it online. I can only assume the mother's action was to get help for her child. While I may not agree with the method, it did start a conversation in our community about bullying. The video ended up in a community group, and there was a lot...
Tuesday, March 22, 2016
Thursday, August 27, 2015
So, what in the world has been happening for the past eight months?
It has been a long while since I have posted here. I figured I'd give a little update on things going on in our world.1) We transitioned Ayden from his school and teacher he had been with since Kindergarten (and some of his classmates since he was 3!) at the end of the year. Change is scary. Really scary. We also moved from a traditional calendar to a balanced calendar (basically year round) and moved from...
Wednesday, November 19, 2014
Struggling
I'm not a complainer. I see things that arise in our life as challenges to be solved. I have a list I check each time we have to look at what to work on, an IEP, a behavior etc. That list helps me to prioritize, solve the challenges in a way that works best for Ayden and for us. So for me, every second spent complaining is one less second spent solving a challenge. And the more time spend solving is less time enjoying life. I have been struggling the past few months, though. A lot....
Tuesday, July 22, 2014
14th Annual Fragile X Conference - Part 1
I arrived back on Sunday from what was the most fun filled, emotional, information packed week I've had in quite some time. I want to share a lot of the information I learned, but putting it into coherent structures is quite difficult so hopefully this makes a bit of sense!
The conference started off with a medications discussion with Drs Randi Hagerman and Liz Berry-Kravis. Not much of this session was new to me because...
Wednesday, May 28, 2014
Becoming Mrs. Rogers Blog Tour!
I'm so excited to have a special blog tour on A Day at A Time today in celebration of a book that is sure to become a must-have for any family living with fragile X syndrome.
There are so many people that have held my hand the past 3.5 years as we have braved this fragile X journey, but Cindi is always one that has offered steady, thoughtful guidance to myself and so many others. Her advice isn't learned in school or read...