Showing posts with label Social Stories. Show all posts
Showing posts with label Social Stories. Show all posts

Tuesday, June 28, 2011

An Early Summer Update

Leave a Comment
I've been so busy with having two kids home and just life in general, that I really haven't been posting much about Ayden.  Since the focus of this IS about him...well, here's my update for the summer thus far.

Summer-time Adjustments - Ayden has been out of school a few weeks now, and is starting to adjust a bit.  The first week was pretty terrible with a lot of whining and crying.  I wish we had time for him to grasp social stories a little before school was out so I could have helped him in that aspect; however, we can only work with what we have.  We have the usual problems between him and Issac amplified which really just amounts to more fighting and in Ayden's case, pushing.  We are very consistent with discipline when Ayden pushes Issac, but nothing is starting to click.  I am hoping that it will just fall into place one day but until then we keep on doing what we're doing and avoiding letting them anywhere near steps/stairs/drop-offs etc. I am extremely thankful that this pushing does not extend to anyone else.

PECS - We have consistently had Ayden at Phase II of PECS for a few weeks, and will be starting to implement Phase III this coming week.  I'm so excited about this as we really get into the "meat" in Phase III where he now should be able to distinguish between the different cards.   I am hoping to be through Phase III by August - so by the time school starts we will have been working in Phase IV for at least a month.

Eating: -  Always a tough spot with Ayden.  He loves eating, but is pretty picky about what and how he eats.  He still pretty much refuses to use silverware, which does make our life a bit more difficult.  He can use it, but not very well, which is why I think he prefers not to.  Right now, his hands are much more efficient at stuffing food into his mouth.  We have introduced two new meals in the past week for lunch times, which is very exciting in our house! I started out by trying mac&cheese with hot dogs, and it was a huge hit.  I was very surprised Ayden ate it, he's never really touched it when I've tried before.  The other meal I successfully introduced was Spaghettios.  Ayden rarely eats anything with tomatoes, so the fact he chowed this stuff down was a pretty big deal.  We've had each meal twice since our first introduction, and each time has been a success.  Of course, we are still continuing to have the kids eating the same thing as us for dinner, but the addition of two new meals to their normal waffles/pancakes/sandwiches for their lunches make my life a lot easier.

Potty Training - I think this is my own personal nightmare with Ayden.  We are trying again this week, and it has been a failure so far (we are only on day 2).  He is showing interest since little brother is now potty trained, but he is very adamant about not going on the potty to the point where I put him on there, ask him if he can go pee and he vehemently shakes his head no.  He drank three cups of liquid and held it for about 5 hours until I put his diaper on for nap time.  I'll keep working this week, and see where we are then.  If he just isn't getting it, we'll be putting it on pause until after our camping trip in mid-July.  I would really like to see him potty trained by the time school starts, but realize that it may not be possible.

Traveling - We have done a fair amount of traveling already this summer, and thankfully Ayden has handled it well.  It's always a bit disorienting for him at first, but he is doing much better than he did last summer.  Over the coming weeks we will have multiple out-of-town trips, including one to a place he has never been with a decent amount of people he doesn't know.  It should be interesting to see how he handles it; though I will be doing my best to help explain to him what is happening - it is just the type of situation he normally melts down in. 

Well, that is everything for now.  I will be doing my best to keep updating over the next few weeks even with our vacations and such.  We will have the iPad sometime this week - so it may be a little easier for me to update away from home!
Read More...

Friday, May 20, 2011

Annual IEP

Leave a Comment
Yesterday marked our second IEP meeting with Ayden's ECSE classroom.  I was completely stressed over the meeting, let me tell you!  I'm not sure why I was stressed because we have an amazing team working with Ayden.  I guess this stuff has just never been what I expected, and also this time we were prepared with what we wanted - very specifically prepared.  We received a lot of input from the Fragile X clinic and know where we want to see Ayden, so I worried that maybe his school wouldn't have the same idea.  Very lucky for us, our goals we had setup for him were very similar to what the school had put together as well.

Essentially, we now have a very good plan in place for the summer and next school year - though we will be having another IEP in the fall because of Ayden's autism diagnosis.  Once there is a medical diagnosis, the school has to also do an evaluation to determine services and sometimes the school and medical diagnosis differ. (His teachers are pretty sure it will not be different in Ayden's case though)

I think I'm going to be creating a goals chart for Ayden as another section on this blog...but here is a basic summary of what we are looking at for a year from now.

Summer: 
 - Work on fine motor skills - especially drawing/writing. 
 - Implement PECS at home, shooting for Level 4 proficiency by the end of the summer
    (Level 4 PECS students should be able to construct simple "I want" + "picture" sentences)
-  Begin to use picture stories to help with self-independence tasks that are part of daily routines
-  Begin to use social stories to help alleviate anxiety

School 2011-2012
- Continue to work on fine motor skills.  Be able to draw horizontal & vertical lines on command as well as a circle and square.  Also be able to write his name.
- Continue to advance in PECS to reach Level 6.  This is the equivalent of being able to construct and spontaneously use short sentences such as "I see", "I want", and "It is" as well as answer questions posed to him that would trigger those responses. 
- Implement a visual schedule that includes teaching Ayden that anything on his schedule is unable to be refused. 
- Continue working on taking turns with peers and purposeful play activities
- Teach him how to use wait, break, and help cards as part of his schedule and PECS. 
- Be able to answer yes/no questions with a nod of his head or the applicable PECS card.  He can already shake his head no, but has not started doing it for yes.

All in all, it was a fantastic meeting.  I can't stress enough how lucky we are to have this team working with Ayden.  They are very knowledgeable and helpful but most importantly want to work with us so Ayden can receive the best help possible.  It's more than comforting to know that when I'm sending my non-verbal son off to the care of others that they really have his best interests at heart and push him just as hard as we do at home.
Read More...

Friday, May 13, 2011

A Special Surprise

Leave a Comment
Just after Ayden was diagnosed, I ran across a website that was offering a merit-based iPad giveaway.  It was a very open-ended entry in that we were asked to send an email (or leave a comment) stating what and why you would use an iPad for.  I entered the contest with a short email telling a little about Fragile X, what our daily struggles are especially with language/communiction, how much Ayden loves his iTouch, and how beneficial it would be for him to have one to help with communication. 

Ayden was chosen as one of the 40 finalists out of around 350 or so entries (at this point, 20 of the finalists would be chosen to receive an iPad).  I remember getting the email and crying.  I entered, but never expected it to go anywhere.  We were informed shortly after we learned we were finalists that there would also be a $500 software allowance offered to each winner.  It was on Mother's Day though, that we found out Ayden was chosen to receive one of the iPads.  I am still completely overwhelmed.  Paired with the software allowance, we will be able to get software that will help with visual schedules, make social stories, practice handwriting and fine motor skills, and function the ability to function as what is essentially an AAC device (the regular ones can run $8-10k!)  As a side note, I will be reviewing the apps we choose for Ayden

Thank you just doesn't seem to be enough.  I only hope other children/families will have an opportunity like this as well. 

As it turns out...another opportunity like this may be coming up very soon!  Marissa's Bunny is running a raffle right now for an iPad 2.  Raffle tickets are $2 a piece, and their semi-silent business partner will be donating 5 more iPads for ever $1000 raised!  Those iPads will be given away like Ayden's was.  Please take a minute to consider donating/purchasing a raffle ticket.  You will not only be helping two amazing families with surgery expenses, but also helping to put iPads in the hands over other children that could benefit from them.  The raffle is open until May 27, you can see the full details here.
Read More...