Wednesday, September 12, 2012

Fragile X Infant Study / NC Trip

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In late August, we packed up the family and headed down to North Carolina - UNC specifically - for Emma to participate in the first part of a longitudinal research study for infants with Fragile X. (More on the travelling in a bit!)   She will have visits at 6 months, 12 months, and 24 months where she will undergo an MRI and developmental assessment.  The MRI takes place while sleeping, and the developmental assessment is very straightforward - especially for those of us that have gone through...
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Tuesday, September 11, 2012

Remember

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September 11. The day when the question you hear is "Where were you?"The day when the word "remember" echoes through our nation.As anyone who was old enough to know what was going on that day, I remember where I was when I found out.  I worked technical support at an internet company and was on the phone with a customer who had flipped her TV on for her child to keep the little one occupied while I helped her out with her internet.  I remember the silence, then the choice words she said - followed by "Get to a television,...
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Monday, September 10, 2012

Kindergarten Week 1

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We have officially completed our first week of kindergarten.  Successfully.  Happily.  No tears. In case you're wondering, Ayden did pretty well too.  :) If it wasn't quite obvious from my post about orientation, I was pretty impressed with our ASD room teacher.  I don't know her background, but she seemed to care about the kids she has a lot from our initial visit. Our first week impressed me even more. The communication pages she sends home each day that she calls a work in progress are amazing....
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